Motor Neurone Disease (MND) Coordinator Service
We are a new service set up in March 2025 by United Lincolnshire Teaching Hospitals NHS Trust in collaboration with the MND Association. The aim of the service is to provide high-quality co-ordinated care for people in Lincolnshire living with MND or Kennedy’s Disease and their families/carers, in accordance with the recommended guidelines.
What can we offer?
We can visit you at home or elsewhere if you prefer, to identify your needs and help ensure the right services are in place.
We also offer appointments by telephone or video.
If you are in hospital, we can offer an in-reach service to help support you whilst on the ward and to support discharge planning.
If you are admitted to hospital, please ask a relative or a nurse on the ward to inform the MND Coordinator on 01522 573995.
Sometimes you may be referred to us whilst you are still having investigations, where a diagnosis of MND is being considered, but not confirmed. In this case, we can help support you through this process and ensure that you have access to the services you need.
We have a dedicated email and phone number for you to contact the MND Coordinators directly in case of the need for support and advice.
We will work closely with anyone who might be involved in your care, this might include:
- Family/carers
- MND Association
- MND Care Centres/Tertiary Hospitals
- Neurology
- St Barnabas Hospice
- Macmillan
- Rehabilitation Medicine
- Neuropsychology
- Speech and Language Therapy
- Orthotics
- Wheelchair Services
- Community Nurses
- Social Services
- Continuing Health Care (CHC)
- Electronic Assistive Technology Service (EATS)
- Neuro Rehabilitation Outreach
- Clinical Specialist Nurses, Dietetics, Occupational Therapy, Physiotherapists
How to refer to us
We accept referrals from any health or social care professional, or through the MNDA. Alternatively, please feel free to contact us directly and we can discuss your referral with you.
Your Team
There are two MND Coordinators covering the county. We offer a dedicated single point of access to service users, their families/carers and professionals, for advice and support Monday to Friday 8am to 4pm.
Areas Covered
We can support anyone with a Lincolnshire GP.
The service runs Monday to Friday 8am to 4pm. In the absence of one coordinator, the other will endeavour to provide cover across the county. There may be exceptional circumstances where this is not possible.
How to contact us
By email: [email protected]
By phone: MND Coordinator Single Point of Access Number: 01522 573995
Please note we are not an emergency service, and we may be out on visits so it may take some time to respond. It is important to contact 999 for a medical emergency or your GP or 111 if medical advice and support are needed.