How we use data for research

In accordance with the GDPR, United Lincolnshire Hospitals NHS trust provides an updated list of all open and follow up studies hosted at their sites.

Detailed information, produced by the Health Research Authority, about how patient information is used in Health and Care Research is available on the Health Research Authority website.

How we process and share personal data as a participating organisation in Research Studies

In addition to the general information outlined in the link above, we have published a list of research studies that the United Lincolnshire Hospitals NHS Trust are involved in (as “Data Processors”), that are co-ordinated by other organisations (research “Sponsors” – The “Data Controller”) which will enable you to find our more detail about how data is processed and shared for specific research studies.

If you are a participant in a study and/or wish to find out more information about a how a Sponsoring organisation manages the personal data it holds for a particular study, you can find out by contacting the sponsoring organisation.

Find out the name of a study sponsor in this report.

You can then find sponsor contact details and further information about a particular study by searching the Clinical Trials Gateway webpages.

If you are unable to find the information you are looking for, or have any queries, please contact the Research & Innovation team at R&[email protected]

How we manage data as the sponsoring organisation (“data controller”) of research studies

As a NHS organisation we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.

If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).

We currently Sponsor (and act as Data Controller for) the following research projects and will provide more detailed information about how data processing is managed for each study over the coming weeks. Please contact R&[email protected] if you have any queries.

Study Title Chief Investigator Study Status
Anti-platelet resistance in patients with myeloproliferative neoplasms Dr Bethan Myers – Consultant Haematologist Completed
Biomarker expression and response to chemo-radiotherapy in NSCLC Dr Abhro Chaudhuri – Consultant Oncologist Completed
Feasibility of a novel motion correction algorithm in SPECT imaging Dr Laura White – Head of Nuclear Medicine Suspended
Frailty and Nutrition Study (FANS) in Lincoln Dr Adrian Slee, PhD – Honorary Research Fellow Completed
GATA1/BCLXL EXPRESSION IN MDS Professor Ciro Rinaldi – Consultant Haematologist Suspended
Pseudophakic CMO assessment by OCT in diabetics version 1 Dr Chris Knapp – Consultant Ophthalmologist Completed
Reasons for removal of third molars; caries incidence in second molars Mr Michael Ward – Dental Core Training Senior House Officer Completed
Stomach specific biomarkers in histological staging of gastritis Dr Tariq Mahmood – Consultant Gastrologist Completed
The Molecular Mechanisms of Mastocytosis Dr Ciaren Graham – Senior Lecturer (Manchester Metropolitan University); Dr Bethan Myers – Consultant Haematologist Completed
Thrombin generation in patients with myeloproliferative neoplasms Dr Bethan Myers – Consultant Haematologist Suspended
XINACT Professor Oleg Eremin Completed