Detailed information, produced by the Health Research Authority, about how patient information is used in Health and Care Research is available on the Health Research Authority website.
How we process and share personal data as a participating organisation in Research Studies
In addition to the general information outlined in the link above, we have published a list of research studies that the United Lincolnshire Hospitals NHS Trust are involved in (as “Data Processors”), that are co-ordinated by other organisations (research “Sponsors” – The “Data Controller”) which will enable you to find our more detail about how data is processed and shared for specific research studies.
If you are a participant in a study and/or wish to find out more information about a how a Sponsoring organisation manages the personal data it holds for a particular study, you can find out by contacting the sponsoring organisation.
You can then find sponsor contact details and further information about a particular study by searching the Clinical Trials Gateway webpages.
If you are unable to find the information you are looking for, or have any queries, please contact the Research & Innovation team at R&[email protected]
How we manage data as the sponsoring organisation (“data controller”) of research studies
As a NHS organisation we use personally-identifiable information to conduct research to improve health, care and services. As a publicly-funded organisation, we have to ensure that it is in the public interest when we use personally-identifiable information from people who have agreed to take part in research. This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole. We do this by following the UK Policy Framework for Health and Social Care Research.
If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful you can complain to the Information Commissioner’s Office (ICO).
We currently Sponsor (and act as Data Controller for) the following research projects and will provide more detailed information about how data processing is managed for each study over the coming weeks. Please contact R&[email protected] if you have any queries.
|Study Title||Chief Investigator||Study Status|
|Anti-platelet resistance in patients with myeloproliferative neoplasms||Dr Bethan Myers – Consultant Haematologist||Completed|
|Biomarker expression and response to chemo-radiotherapy in NSCLC||Dr Abhro Chaudhuri – Consultant Oncologist||Completed|
|DEVELOPING A SYSTEM FOR AUTOMATION AND QA OF US FETAL MEASUREMENT||Dr Nick Dudley, PhD – Principal Physicist||Suspended|
|Feasibility of a novel motion correction algorithm in SPECT imaging||Dr Laura White – Head of Nuclear Medicine||Suspended|
|Frailty and Nutrition Study (FANS) in Lincoln||Dr Adrian Slee, PhD – Honorary Research Fellow||Completed|
|GATA1/BCLXL EXPRESSION IN MDS||Professor Ciro Rinaldi – Consultant Haematologist||Suspended|
|Pseudophakic CMO assessment by OCT in diabetics version 1||Dr Chris Knapp – Consultant Ophthalmologist||Completed|
|Reasons for removal of third molars; caries incidence in second molars||Mr Michael Ward – Dental Core Training Senior House Officer||Completed|
|Stomach specific biomarkers in histological staging of gastritis||Dr Tariq Mahmood – Consultant Gastrologist||Completed|
|The Molecular Mechanisms of Mastocytosis||Dr Ciaren Graham – Senior Lecturer (Manchester Metropolitan University); Dr Bethan Myers – Consultant Haematologist||Completed|
|Thrombin generation in patients with myeloproliferative neoplasms||Dr Bethan Myers – Consultant Haematologist||Suspended|
|XINACT||Professor Oleg Eremin||Completed|